Meds Suck

So I paid my good old neurologist a visit yesterday. Oh boy do I love driving into the city and looking for parking. I have paid so much money in co pays, medications, and parking in the last week it’s crazy. I have a lot more city driving to do in the coming weeks. I sat with my doctor and explained what I have been feeling and what’s been going on in my life the last two months. He suggested new MRIs from head to toe. Let me suggest that anyone looking for a food time lay in an MRI machine drugged up for two hours…woohoo! Good times people, good times. I am so looking forward to it. It is also time for my six month check up with my neuro ophthalmologist to make sure the medication II am on is not causing macular edema. Then on to my dermatologist to make sure the meds are not causing any melanomas. Then another trip back to NYU for test results and more treatment discussions. Yesterday’s appointment added one more pill for me to take every day. Will somebody come up with the damn cure already please!

It is crazy how one med to help something creates so many other issues. Sometimes I feel it’s not worth it to take the medicines because of the major risk factors involved. Alas I have tried going without and have found that I am not one of the lucky MS patients who can do that. My daily medication regime is now up to five different medications on a daily basis. Yea! Party at my house! It is at the point where I need a pill case to make sure I take all the right stuff every day, like an old person. My kitchen cabinet has now turned into a medicine cabinet. Let’s not forget the vitamins I should be taking but can’t remember to buy, vitamin D, biotin, a multi vitamin. And then there are the days where I feel crazy and think Tylenol or alive with help get rid of some pain, silly me. I feel like a walking pharmacy.

Ok so back to the doctor visit. I like my neurologist and would recommend him to anyone, I just wish he was on Staten Island. It is true; the good ones are in the city. So as I said we discussed treatment and he added a new medication to my arsenal. He has also been mentioning doing IVIG treatments which is a monthly infusion designed to make you feel better. The other medication I am on is designed to slow if not prevent disease progression. I am considering going on this course of treatment. I am forced to go back to work due to the fact that I am not a millionaire and my disability benefits have run out. Apparently I am not having relapses, I have never completely recovered from the last one I had and the heat is making existing symptoms worse. I was not one of the “complainers” on facebook wishing for the summer and this is why. The heat is detrimental to me. Now I hate the huge amounts of snow we had but I don’t mind the cold one bit. My electric bill also suffers along with me. Being on the second floor with a broken attic fan, my AC never shuts off. The doctor also recommended talking to the staff psychologist to which I replied NO. I don’t like talking to people like that, I rather bitch and moan to those who know and love me. I also told him I created this blog instead of talking to someone. I much rather write than talk even when I’m in pain. I must keep my public happy. ;)