About Me

My photo
I'm a MS Warrior, a mom of 2 boys, and the best wife ever!! I was forced into early retirement due to MS. I decided to become a distributor for ItWorks Global and work from home.

Monday, May 9, 2016

New treatment

     So on April 25th I had a 6 hour infusion done. This is my new medication. I sat there with my parents all day hooked up to an IV. I'm not gonna lie I'm not100% sure what type of medicine it is. I heard it was a type of chemo, I heard it wasn't, I've also heard its used in chemo but it isn't actual chemo. I don't know I've read and heard a bunch of different things from the doctors and nurses. Anyway all I know is there are 2 hours of preventative melds pumped into me before the 3 hour medication and a half hour flush after. One of the pre meds made me sleep for a while but no reactions or side affects which was great. My second treatment was 14 days later which was today. It hit me hard today, I slept Thea entire time and it made me feel a little sick today.
     So within the two weeks between my treatments I guess I was hopping for some sort of miracle. No such luck. I'm still getting worse day by day and last week was probably one of my worst weeks in a long time. If I don't start feeling better in another week or so I have decided to go back to the doctor who originally diagnosed me with MS. 
      I am a firm believer in a person knowing their bodies. I knew I what was wrong with me before I got an official diagnosis. I have also been feeling that what is wrong with me is something beyond MS. My doctor tells me it"100% is MS" it's progressive he tells me. He also changes his answers with every visit. I gave him one last chance with this treatment. Lets just say I'm not hopeful. I've been on a lot of different medications in the last six years and I still feel like poo. If your doctor doesn't listen and meet you half way it's time to move on people. I like Dr. Howard but I'm afraid I might have to move on.  So my point to this is that I now have two treatments down and this is the final try.

1 comment:

  1. I write to inform, you read to learn. Feel free to share

    ReplyDelete