So I feel the urge to write once in a while but it’s
been about a year since my last entry. I always read my previous entries and
notice that the last one almost says it all. I add this to though, lets multiply
last year by 10. I also add that my MS is progressive and boy is it. I walk
like Quazy Motto, dragging my leg. I have a “dead leg” or at least that’s what
it feels like the leg of a corpse. When I am able to walk it drags making me
trip over the natural texture on the street. I also sleep 78% of my life away.
My internal issues have worsened and now we are expanding to the lungs and
brain now.
MS is dubbed
a “snowflake” disease. This is just one of the many nicknames it has been
given. It was given this name because like a snow flake no two are alike; the
same holds true for people with MS no two cases are alike. I know about ten people
with MS and not one of our cases are the same. What works for one might not work for another.
I try whatever I can within my means to feel better. The sad truth is nothing
helps. The research and treatments is also lacking when it comes to Progressive
MS. BTW that’s the type I have.
I will
stop here because I cannot organize my thoughts enough to write and my hands
are not cooperating. Next time I will post an unedited version of what I write
to show how hard a simple task like typing is for me. Again I don’t write for sympathy I write to
inform. Please feel free to read older posts and ask any questions.